Give now and share
Donate! Every. single. dollar. counts. towards a guaranteed gene therapy. It's not a matter of IF, but *when* we have the funds, and making *when* happen *as fast as possible* is most crucial for Leo.
Text this website personally to five people with a short ask
Drop this website in your group chats and ask them to keep the chain going by sharing with others
Use the below templates and flyers to spread the word to your friends, family, work, gym, and faith communities.
Post, pin, and repeat
Share and pin leoslight.org to your Instagram, Facebook, TikTok, X, LinkedIn, and Nextdoor.
Birthdays and holidays are great ways to ask your community for a donation in your name.
Place the cause where people pay
Ask your coffee shop, gym, church, school, salon, and favorite restaurant to display the flyer or a counter card with the QR code.
Add a round-up jar labeled “Help fund SPG52 gene therapy for Leo.”
Become a monthly donor
Pick $15, $35, or $100 per month.
Monthly gifts keep researchers on schedule and protect Leo’s time window.
Unlock company matching
Submit your receipt to your employer match portal.
If no portal exists, email HR to request a one-time match for this fundraiser.
Make three warm introductions
Connect us to a company leader, a clinic or therapy practice, and a local reporter.
Host a micro-event this month
Examples: dinner party, trivia night, yoga class, porch concert, bake sale.
Sell tickets or suggest a donation.
Sponsor a match day
Pledge a cap (for example, $2,500). We will announce that all gifts today are doubled until the cap is met.
Offer professional skills or in-kind
High impact needs: PR, video, design, volunteering, silent auction items.
Facebook / Instagram
Friends / Family
My dear friends and family, I want to share something important. Our friends' little boy, Leo, is just 2 years old and has an ultra rare genetic condition called SPG52 that slowly takes away a child's ability to walk and talk.
A team of researchers has already built a promising gene therapy, and families like Leo's have funded the research phase. Now they urgently need help to pay for final safety testing, manufacturing, and the first in human trial.
If you are able, please donate at **[www.leoslight.org](http://www.leoslight.org)** and share Leo's story with a few people you love. Every single gift, big or small, moves him closer to treatment.
#curespg52 #leoslight #spg52 #raredisease
Community / Parent Friends
Parent to parent, I am asking for your help. Our friends' 2 year old son, Leo, has SPG52, a devastating rare disease that slowly steals basic skills most of our kids take for granted.
A gene therapy has been designed specifically for SPG52, and families have already raised the money to get through the research stage. Now they need support for the last and most expensive steps: safety testing, manufacturing, and the first in human trial.
If you feel moved, please donate at **[www.leoslight.org](http://www.leoslight.org)** and share Leo's story with your parent groups, school chats, or community. Standing together as parents is how we give kids like Leo a real chance.
#curespg52 #leoslight #spg52 #raredisease
Professional / Acquaintance
I know we usually connect here around work and life updates, but today I am sharing something different and urgent. A friend's 2 year old son, Leo, has SPG52, an ultra rare genetic condition that leads to severe disability.
A targeted gene therapy has already been created, and the families have funded the early research. They now face the high cost of safety testing, manufacturing, and the first in human clinical trial, which are not covered by traditional funding.
If you are able, please consider making a donation or simply sharing **[www.leoslight.org](http://www.leoslight.org)**. Signal boosting matters just as much as giving.
#curespg52 #leoslight #spg52 #raredisease
### Friends / Family
I do not often post personal fundraisers here, but this one matters deeply. My friends' 2 year old son, Leo, has SPG52, an ultra rare genetic condition that takes away a child's ability to walk and talk.
Researchers have developed a targeted gene therapy, and the families have already funded the research phase. They now need support for final safety testing, manufacturing, and the first in human clinical trial. If you are in a position to help, please consider donating or sharing **[www.leoslight.org](http://www.leoslight.org)** with your network. Collective action can change the trajectory of one child's life and push forward science for many more.
#curespg52 #leoslight #spg52 #raredisease
Community / Parent Friends
To my fellow parents and community builders here: I am supporting a family whose 2 year old son, Leo, has SPG52, a devastating ultra rare condition that takes away the ability to walk and talk.
There is a realistic path forward in the form of a gene therapy that has already been developed. Families have funded the research phase and are now working to cover safety testing, manufacturing, and the first in human trial. If you can, please consider donating or sharing **[www.leoslight.org](http://www.leoslight.org)** with your networks, schools, and community groups. Our combined effort can move this from possible to real for Leo and others.
#curespg52 #leoslight #spg52 #raredisease
Professional / Acquaintance
I rarely share personal causes here, but I am making an exception for this one. A colleague and friend has a 2 year old son, Leo, who has SPG52, an ultra rare neurogenetic condition that leads to profound motor and speech challenges.
A gene therapy specifically for SPG52 has been developed, and families have already raised enough to complete the research phase. They are now working to fund the remaining steps: safety testing, manufacturing, and the first in human trial. If you or your organization are in a position to support, please consider a contribution or a share of **[www.leoslight.org](http://www.leoslight.org)**. Strategic philanthropy at this stage has the power to move an entire field forward.
#curespg52 #leoslight #spg52 #raredisease
Twitter / X
Friends / Family
My friends' little boy Leo is 2 and has SPG52, an ultra rare genetic disease. A gene therapy is ready, but families must fund final safety testing and trials.
Please donate or share **leoslight.org**. Any amount helps.
#curespg52 #leoslight #spg52 #raredisease
Community / Parent Friends
Parents and community friends: I am supporting Leo, a 2 year old with SPG52, a rare disease that takes away the ability to walk and talk. A gene therapy exists, but families must fund safety testing and trials.
Please donate or share **leoslight.org** with your parent groups.
#curespg52 #leoslight #spg52 #raredisease
Professional / Acquaintance
I do not post fundraisers often, but this one is urgent. A friend's 2 year old son, Leo, has SPG52, an ultra rare genetic disease. A gene therapy is ready, but families must fund safety testing and first in human trials.
Even a small donation or a repost of **leoslight.org** helps.
#curespg52 #leoslight #spg52 #raredisease
Friends/Family
Hey [Name] — I want to share something important. My friends’ little boy, Leo, is just 2 years old and has been diagnosed with SPG52, a rare genetic condition. There’s hope — researchers have created a promising gene therapy, but families must raise the money. Their efforts have funded the research phase and now need help for final safety testing before manufacturing and the first in-human trial. Would you consider donating or sharing this link? www.leoslight.org
I’m helping fund SPG52 gene therapy for sweet Leo. Please consider giving at LeosLight.org - any amount helps! If you could send this to three of your family or friends, that would help Leo tremendously. Thank you!
--
Hi [Name], I wanted to tell you about Leo, the 2-year-old son of my dear friends. He has SPG52, an ultra-rare disease that takes away the ability to walk and talk. Researchers have developed a gene therapy, but families like theirs must continue to fundraise to cover the safety testing, manufacturing, and in-human trials. Please consider supporting, every bit helps: www.leoslight.org
Community / Parent Friends
Hi [Name], I’m reaching out parent-to-parent. My good friends’ 2-year-old son Leo has SPG52, a devastating rare disease. The only hope is a gene therapy that families like theirs must fund. Their efforts have funded the research phase and now need help for final safety testing before manufacturing and the first in-human trial. Would you consider donating or sharing Leo’s story? www.leoslight.org
Professional / Acquaintance
Hi [Name], I don’t usually send messages like this, but this is urgent. A friend’s 2-year-old son, Leo, has SPG52, an ultra-rare genetic condition. Researchers have developed a gene therapy, but families like theirs must continue to fundraise to cover the safety testing, manufacturing, and in-human trials. Even a small donation or sharing the link makes a difference: www.leoslight.org
For Family & Friends
Subject: Help bring hope to Leo 💛
Dear [Name],
I’m reaching out about something close to my heart. My friends’ little boy, Leo, is 2 years old and has been diagnosed with SPG52, an ultra-rare genetic disease that causes seizures and robs children of the ability to walk and talk.
There is hope. Researchers at the Universitat Autònoma de Barcelona have developed a promising gene therapy, but families must raise the money to make it a reality. Their efforts have already funded the research and now they need help crossing the finish line for final safety testing, manufacturing, and the first in-human trial (where Leo may be able to participate!). Would you consider donating or sharing his story?
Donate here
👉 www.leoslight.org
Share Leo's story
👉 instagram: https://www.instagram.com/lightforleo
👉 tiktok: https://www.tiktok.com/@lightforleo
👉 facebook: https://www.facebook.com/people/Leos-Light-Cure-SPG52/61584235348413/#
Every gift and every share helps bring this treatment closer to reality for Leo. Thank you for standing with him and his family.
With gratitude,
[Your Name]
For Extended Networks / Professional Contacts
Subject: Join us in helping Leo 💛
Dear [Name],
I don’t often send emails like this, but I wanted to share about Leo, the 2-year-old son of close friends. He has been diagnosed with SPG52, an ultra-rare genetic disease that takes away children’s ability to walk, talk, and live independently.
There is real hope: researchers have created a gene therapy that works in the lab. But families must raise the money to make it a reality. Their efforts have already funded the research phase and now they need help crossing the finish line for final safety testing, manufacturing, and the first in-human trial.
Donate here
👉 www.leoslight.org
Share Leo's story
👉 instagram: https://www.instagram.com/lightforleo
👉 tiktok: https://www.tiktok.com/@lightforleo
👉 facebook: https://www.facebook.com/people/Leos-Light-Cure-SPG52/61584235348413/#
Every contribution, no matter the size, brings Leo and kids like him closer to life-saving treatment.
Warmly,
[Your Name]